An investigation by Consumer Reports has identified that the privacy policies and practices of direct-to-consumer genetic testing companies compromise consumers’ privacy. While the companies do a “relatively decent job” of protecting DNA data, that is not the case with other data collected, including names, addresses, and emails, as well as family and health data, the organisation has revealed. The research found companies are granted expansive permissions regarding DNA and non-DNA data, collect additional data that reveals “a detailed profile” of users, and “routinely” share customer data with third parties.
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